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Long term health conditions >> Women 16-18 >> Sarah - Interview 29 >> Until she was 13 she did not think that plastic surgery would be possible. She found out that it was when she saw a specialist in London.

Sarah was diagnosed with a localised form of a skin condition called morphea in which there are well demarcated plaques of fibrosis restricted to the skin. In her case this affects the right side of her nose and the top of the right side of her forehead. Recently she has had surgery in which fat from her stomach was injected into the right side of her nose and her forehead and the cheekbones. Doctors have explained that she will need several similar operations before they reconstruct her nose an

Long term health conditions >> Women 16-18 >> Sarah - Interview 29 >> Describes the plastic surgery she has had, and will have, for her rare skin condition.

Long term health conditions >> Women 16-18 >> Sarah - Interview 29 >> Talks about what it is like to see several specialist teams in different cities. Feels most comfortable with the team she has been seeing the longest.

Publication date: October 2007 Last updated: February 2012

Review date: February 2014

Various long-term health conditions can occur in young people. We interviewed 30 young people about their experiences of different chronic illnesses. Select from the key topics below, choose from the full list of topics on the right hand side of this page, or explore all the interviews by clicking on people's stories below.

Sophie says: “I've had a good weekend despite my lungs not feeling too good. My boyfriend's training to climb Mount Kilimanjaro so we have been hiking!”
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Long term health conditions

Publication date: October 2007 Last updated: February 2012

Review date: February 2014

Long term health conditions >> Women 19-23 >> Sara - Interview 27 >> Her sex life with her boyfriend was difficult for some weeks after a hip operation. Otherwise does not think her arthritis has caused problems for her

Sara was diagnosed in 1990 with Juvenile chronic arthritis. She has had a finger tendon repair & a hip replacement. Current medication Anti-TNF Humira injected 2/month, indometacin, co-codamol & Lansoprazole. Says that with her current medication she has more energy to do things like exercise. She attended a Tai Chi course for people with arthritis and really enjoyed it.

Long term health conditions >> Women 16-18 >> Sarah - Interview 29 >> Describes the plastic surgery she has had, and will have, for her rare skin condition.

Long term health conditions >> Women 16-18 >> Donna - Interview 25 >> Describes the 'work up' she and her donor (her mother) needed to have before her kidney transplant.

Donna was diagnosed age 13 with a kidney condition called Mesangiocapillary Glomerulonephritis type II. After diagnosis she was on medication and remained stable for three years. But her condition deteriorated and she needed a kidney transplant. Her mother was her donor. Her sudden deterioration affected her physically and also emotionally. She became depressed and felt rejected and isolated from her then 'group of friends'.

Long term health conditions >> Women 16-18 >> Donna - Interview 25 >> Her mother donated her own kidney for the transplant so was recovering in hospital and unable to be with her when she had to go for her transplant sur

Long term health conditions >> Men 16-18 >> James - Interview 21 >> Had emergency surgery but then got an infection called peritonitis which made him feel very ill and in terrible pain.

James has a renal condition called Senior Loken Syndrome and it means that his kidneys didn't develop as he grew older. James was diagnosed with his condition when he was eleven years old and since then he has spent much of his time on dialysis. Four times a week he goes to hospital to have dialysis and he is able to attend school two days a week. This condition affects both his kidneys and his eyes and James is now registered blind.

Surgery and hospital treatments

Long term health conditions >> Men 16-18 >> James - Interview 21 >> After his kidney transplant surgery he had lots of tubes and lines attached to different parts of his body. Unfortunately the transplant failed.

full list of topics

Diagnosis & learning more :

Physical problems, med's & managing your condition :

Life style :

What makes a good doctor and transition issues :

Living with it :

Talking about relationships :

Advice to others :