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Long term health conditions >> Women 24+ >> Lara - Interview 03 >> Knew very little about epilepsy. It is reassuring to meet other young people who have coped with the condition and says it can be hard to accept infor

Lara was diagnosed with myoclonic juvenile epilepsy when she was 17 years old. She became depressed and lost her confidence after diagnosis but she wasn't offered counselling. Her nurse has provided her with lots of support. Nowadays she jokes about her epilepsy giving it derogatory names and says that it is one way of coping with it. She has no problem in telling others about her epilepsy.

Long term health conditions >> Women 24+ >> Miriam - Interview 07 >> It was a massive confidence boost to attend a conference weekend for young people with ME.

Almost ten years ago Miriam was diagnosed with glandular fever and given three courses of antibiotics. Her symptoms didn't improve and she couldn't continue with her university course. It was a homeopathic doctor who suggested she might have developed ME or chronic fatigue syndrome (CFS). It has taken her nine years to feel better again. She says that pacing and the acknowledgement of limitations are important tools for mending.

Long term health conditions >> Women 24+ >> Miriam - Interview 07 >> She differentiates between the 'being ill type of tiredness' and the tiredness that comes from physical activity and discusses how her ME affected her

Long term health conditions >> Women 19-23 >> Sophie - Interview 15 >> She was feeling healthy but started to cough blood. Her doctors decided to conduct a procedure called bronchial artery embolisation.

Sophie was diagnosed with cystic fibrosis when she was 8 years old. She was taught by her parents to do all her own medications and treatments and encouraged to do sport. She is the Social secretary for her university Netball Cub. Sophie has a positive approach to her condition and says that she lives life to the full.

Long term health conditions >> Women 19-23 >> Helene - Interview 04 >> She has learnt from experience about taking care of herself. Says that when you are a teenager you are trying to be like everyone else but your body i

Helene has had sickle cell anemia since birth. Sickle cell is when the blood cells are shaped like a half moon and they cannot pass through the veins so easily and this causes pain in, for example, elbows and knees. Helene takes penicillin and folic acid everyday and needs to avoid getting cold.

Long term health conditions >> Women 16-18 >> Mica - Interview 16 >> She used to feel different when she could not join in activities because of her sickle cell. However people do tend to be kind and helpful towards her

Mica has lived with sickle cell anemia since birth. Her Mum and her brother also have the condition. Her mother has played an important role in helping Mica and her brother to develop a positive attittude towards having sickle cell anaemia. Mica says that she now feels in control of her condition.

Long term health conditions >> Women 19-23 >> Sophie - Interview 15 >> She thought that alcohol didn't affect her but one time she drank a lot and ended up in hospital with acute pancreatitis. She hasn't drunk alcohol sin

Long term health conditions >> Women 16-18 >> Mica - Interview 16 >> She drank a lot of vodka which triggered a sickle cell crisis. She still remembers the pain and says that after that she can't stand alcohol.

Long term health conditions >> Women 24+ >> Catherine - Interview 02 >> She does drink alcohol and it doesn't affect her but she was worried about her epilepsy and alcohol when a teenager.

For many years Catherine stayed on a treatment that was not successfully controlling her epilepsy. And as a teenager she didn't know much about the different medications available. In her early twenties her new consultant put her on new medication that has improved the overall management of her condition.

Long term health conditions >> Women 19-23 >> Sophie - Interview 15 >> She is generally open about her cystic fibrosis and thinks that is it better to tell others the reason why she does not drink alcohol to avoid awkward

Long term health conditions >> Women 16-18 >> Lucy - Interview 05 >> She says that the advice and information given to her by the diabetes nurse have been most useful and as a result she is less inclined to drink or to

Lucy has had type 1 diabetes for 11 years. Two years ago her mother was also diagnosed with type 1 diabetes. There was a period when her diabetes control overall wasn't very good. Lucy has been working with her consultant at improving her overall control by setting an action plan, like for instance 'losing weight'. She is feeling much better now.

Long term health conditions >> Men 16-18 >> David - Interview 20 >> He says that his asthma would of course get worse if he were to start smoking and stop doing exercise. He drinks very little alcohol and tries to avoi

David was diagnosed with asthma at the age of 5 and his mother thinks that it was triggered off by a really bad cold. His asthma is mild and he is not on regular medication but he uses his inhaler before doing sports. He sees a specialist nurse once a year for check ups.

Long term health conditions >> Women 19-23 >> Annette - Interview 31 >> Discusses friend's attitudes, learning from own experience, giving up illegal drugs and the lack of communication she had with doctors.

Annettte was diagnosed with epilepsy when she was 15 years old. Before her diagnosis she was going through what she described as a 'very rebellious phase' and both drinking a great deal and taking illegal drugs. After her diagnosis she stopped taking illegal drugs and nowadays she hardly drinks alcohol at all. Family and friends have been very supportive.

Long term health conditions >> Women 19-23 >> Sophie - Interview 15 >> Her social life at university was hectic and she began to feel run down. She has learned what she can and can't do and the health implications of her

Long term health conditions >> Men 19-23 >> David - Interview 08 >> As a teenager he lacked self confidence but university and the experience of being seriously ill changed him into a more outgoing person. His social l

David has had twenty-seven operations in twenty-three years - the main ones including knee and hip replacement, leg straightening and spinal fusion. This meant that he has missed a great deal of schooling but he has always been determined to continue with his education. He finished his GCSE's, did his A' levels and has recently finished his university degree.

Publication date: October 2007 Last updated: February 2012

Review date: February 2014

Various long-term health conditions can occur in young people. We interviewed 30 young people about their experiences of different chronic illnesses. Select from the key topics below, choose from the full list of topics on the right hand side of this page, or explore all the interviews by clicking on people's stories below.

Sophie says: “I've had a good weekend despite my lungs not feeling too good. My boyfriend's training to climb Mount Kilimanjaro so we have been hiking!”
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full list of topics

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