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  • Long term health conditions >> Women 19-23 >> Elizabeth - Interview 01 >> She has a few ideas about how schools could help young people with chronic conditions not to miss their education. Thinks that it is a good idea for n

Elizabeth was diagnosed with scoliosis at the age of 16. She now works for a Department of Health funded project. She says that as a teenager she 'rebelled' against her condition and stopped taking her painkillers. Her attitude now is to work with her condition rather than against it. She takes regular exercise and does a lot of walking.
  • Long term health conditions >> Women 19-23 >> Sophie - Interview 15 >> Her social life at university was hectic and she began to feel run down. She has learned what she can and can't do and the health implications of her

Sophie was diagnosed with cystic fibrosis when she was 8 years old. She was taught by her parents to do all her own medications and treatments and encouraged to do sport. She is the Social secretary for her university Netball Cub. Sophie has a positive approach to her condition and says that she lives life to the full.
  • Long term health conditions >> Men 19-23 >> Rollo - Interview 11 >> ME affected his confidence particularly when he was a teenager. Says that when he is well he feels more positive about things including finding a girl

Rollo thinks that what triggered his ME/CFS was an overdose of vaccinations that he had received at school prior to travelling to Asia. Following this he started having joint pains and became very emotional. He was diagnosed with ME/CFS by an 'alternative practitioner' a few years after getting ill. Says that ME/CFS affects different people in different ways and that doctors should learn to recognise that.

  • Condition
  • Long term health conditions

Publication date: October 2007 Last updated: February 2012

Review date: February 2014

 

Various long-term health conditions can occur in young people. We interviewed 30 young people about their experiences of different chronic illnesses. Select from the key topics below, choose from the full list of topics on the right hand side of this page, or explore all the interviews by clicking on people's stories below.

 
Sophie says: “I've had a good weekend despite my lungs not feeling too good. My boyfriend's training to climb Mount Kilimanjaro so we have been hiking!”
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full list of topics

Diagnosis & learning more :

  • On being diagnosed
  • Information and support
  • Peer support and voluntary groups

Physical problems, med's & managing your condition :

  • Pain and physical problems
  • Finding the right medication
  • Taking and not taking medication
  • Surgery and hospital treatments
  • Looking after yourself: getting the balance right
  • Dealing with feelings and emotions

Life style :

  • Alcohol, smoking and illegal drugs
  • Sport and exercise
  • Diet

What makes a good doctor and transition issues :

  • Getting on with your healthcare team
  • Talking to doctors and nurses
  • Transition from children's to adult services/clinics

Living with it :

  • Contraception, pregnancy and sexual health
  • Going out
  • School life
  • University
  • Going to work

Talking about relationships :

  • Friends
  • Dealing with the family
  • Boyfriend, girlfriend and sex

Advice to others :

  • Advice to other young people
  • Advice to doctors and nurses
Long term health conditions

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