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  • Clip
  • Long term health conditions >> Women 19-23 >> Sara - Interview 27 >> She decided to eat everything but in moderation. She takes cod liver oil and vitamin D but prefers to get all other nutrients she needs from her diet.

Sara was diagnosed in 1990 with Juvenile chronic arthritis. She has had a finger tendon repair & a hip replacement. Current medication Anti-TNF Humira injected 2/month, indometacin, co-codamol & Lansoprazole. Says that with her current medication she has more energy to do things like exercise. She attended a Tai Chi course for people with arthritis and really enjoyed it.
  • Long term health conditions >> Men 16-18 >> Joseph - Interview 17 >> Says that he eats what he wants because he has always enjoyed his food particularly when his arthritis was bad.

Joseph was diagnosed with Enthesitis Related Arthritis at the age of seven. After initial remission his condition flared up again and it became more difficult to control. He was started on a new drug, Enbrel and has been on remission for the last two years.
  • Long term health conditions >> Women 19-23 >> Sophie - Interview 15 >> At university she found it hard to get the balance right and ended up not eating the high energy diet she needed to maintain her weight, exercise regi

Sophie was diagnosed with cystic fibrosis when she was 8 years old. She was taught by her parents to do all her own medications and treatments and encouraged to do sport. She is the Social secretary for her university Netball Cub. Sophie has a positive approach to her condition and says that she lives life to the full.
  • Long term health conditions >> Women 16-18 >> Lucy - Interview 05 >> The only - and best - way to have sweets is after a meal, as a 'treat'. At one point she was eating too many sugary things and having lots of diabetic

Lucy has had type 1 diabetes for 11 years. Two years ago her mother was also diagnosed with type 1 diabetes. There was a period when her diabetes control overall wasn't very good. Lucy has been working with her consultant at improving her overall control by setting an action plan, like for instance 'losing weight'. She is feeling much better now.
  • Long term health conditions >> Women 19-23 >> Jodie - Interview 18 >> Does not need a high fat content diet for her cystic fibrosis because her weight is fine but she finds it hard to control her blood sugar levels parti

Jodie has cystic fibrosis (CF) and was diagnosed with CF related type 1 diabetes in her early teens. Of the two conditions she finds her diabetes the harder to control particularly because she has a very active life. She finds that the specialist care she received is brilliant. She remains thankful for all the nagging she got from her Dad and her children's consultant.
  • Long term health conditions >> Women 16-18 >> Donna - Interview 25 >> She had to make a lot of changes to her diet because of kidney disease. Her dietician gave her a lot of advice and information including a booklet wit

Donna was diagnosed age 13 with a kidney condition called Mesangiocapillary Glomerulonephritis type II. After diagnosis she was on medication and remained stable for three years. But her condition deteriorated and she needed a kidney transplant. Her mother was her donor. Her sudden deterioration affected her physically and also emotionally. She became depressed and felt rejected and isolated from her then 'group of friends'.
  • Long term health conditions >> Men 16-18 >> Andrew - Interview 24 >> He was diagnosed with Coeliac disease and had to change his diet to a gluten free diet. A restricted diet can be difficult when eating out but on the

Andrew has type 1 diabetes and Coeliac Disease. He was diagnosed first with type 1 diabetes when he was 11 years old and was diagnosed with Coeliac 3 years later. He changed his insulin regimen and he finds that the short-acting and long-acting insulin regimen gives him more freedom to choose when and what to eat. He needs to have a gluten-free diet because of his Coeliac which means that he cannot eat wheat, oats, barley and rye. Says that his mother makes very good gluten-free cakes!
  • Long term health conditions >> Men 16-18 >> Andrew - Interview 24 >> He says that there are a number of gluten free things he can get on prescription including bread, but the family bake their own gluten free bread and

Andrew has type 1 diabetes and Coeliac Disease. He was diagnosed first with type 1 diabetes when he was 11 years old and was diagnosed with Coeliac 3 years later. He changed his insulin regimen and he finds that the short-acting and long-acting insulin regimen gives him more freedom to choose when and what to eat. He needs to have a gluten-free diet because of his Coeliac which means that he cannot eat wheat, oats, barley and rye. Says that his mother makes very good gluten-free cakes!

  • Condition
  • Long term health conditions

Publication date: October 2007 Last updated: February 2012

Review date: February 2014

 

Various long-term health conditions can occur in young people. We interviewed 30 young people about their experiences of different chronic illnesses. Select from the key topics below, choose from the full list of topics on the right hand side of this page, or explore all the interviews by clicking on people's stories below.

 
Sophie says: “I've had a good weekend despite my lungs not feeling too good. My boyfriend's training to climb Mount Kilimanjaro so we have been hiking!”
Join the
Long term health conditions discussion on MyYouthhealthtalk

  • Topic
  • Long term health conditions >> Diet >> Diet

Diet

  • Long term health conditions >> Women 19-23 >> Elizabeth - Interview 01 >> Has a diet that is rich in calcium to help keep her bones healthy. Is careful about her calorie intake to control her weight and avoid too much pressu

Elizabeth was diagnosed with scoliosis at the age of 16. She now works for a Department of Health funded project. She says that as a teenager she 'rebelled' against her condition and stopped taking her painkillers. Her attitude now is to work with her condition rather than against it. She takes regular exercise and does a lot of walking.
  • Long term health conditions >> Women 19-23 >> Sara - Interview 27 >> She decided to eat everything but in moderation. She takes cod liver oil and vitamin D but prefers to get all other nutrients she needs from her diet.

Sara was diagnosed in 1990 with Juvenile chronic arthritis. She has had a finger tendon repair & a hip replacement. Current medication Anti-TNF Humira injected 2/month, indometacin, co-codamol & Lansoprazole. Says that with her current medication she has more energy to do things like exercise. She attended a Tai Chi course for people with arthritis and really enjoyed it.
  • Long term health conditions

Publication date: October 2007 Last updated: February 2012

Review date: February 2014

 

Various long-term health conditions can occur in young people. We interviewed 30 young people about their experiences of different chronic illnesses. Select from the key topics below, choose from the full list of topics on the right hand side of this page, or explore all the interviews by clicking on people's stories below.

 
Sophie says: “I've had a good weekend despite my lungs not feeling too good. My boyfriend's training to climb Mount Kilimanjaro so we have been hiking!”
Join the
Long term health conditions discussion on MyYouthhealthtalk

  • Long term health conditions >> Women 16-18 >> Donna - Interview 25 >> She had to make a lot of changes to her diet because of kidney disease. Her dietician gave her a lot of advice and information including a booklet wit

Donna was diagnosed age 13 with a kidney condition called Mesangiocapillary Glomerulonephritis type II. After diagnosis she was on medication and remained stable for three years. But her condition deteriorated and she needed a kidney transplant. Her mother was her donor. Her sudden deterioration affected her physically and also emotionally. She became depressed and felt rejected and isolated from her then 'group of friends'.

full list of topics

Diagnosis & learning more :

  • On being diagnosed
  • Information and support
  • Peer support and voluntary groups

Physical problems, med's & managing your condition :

  • Pain and physical problems
  • Finding the right medication
  • Taking and not taking medication
  • Surgery and hospital treatments
  • Looking after yourself: getting the balance right
  • Dealing with feelings and emotions

Life style :

  • Alcohol, smoking and illegal drugs
  • Sport and exercise
  • Diet

What makes a good doctor and transition issues :

  • Getting on with your healthcare team
  • Talking to doctors and nurses
  • Transition from children's to adult services/clinics

Living with it :

  • Contraception, pregnancy and sexual health
  • Going out
  • School life
  • University
  • Going to work

Talking about relationships :

  • Friends
  • Dealing with the family
  • Boyfriend, girlfriend and sex

Advice to others :

  • Advice to other young people
  • Advice to doctors and nurses
Long term health conditions

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