Do you have any other sources of support, for example support groups.
I'm terrible, I'm not very good at, I've had I've been a member of the endometriosis society for a long time and I've had numbers and people, they've phoned me up before and stuff like that, but I don't do support groups. Maybe I should, but I don't because, I think, if I was honest and true, I think it would make it an awful lot more real than, I don't, I suppose it already is very real but by talking to, talking about it with people who are experiencing it as well, makes me feel like, makes me feel vulnerable, not vulnerable, makes me feel…ill. So I don't, but the, one of the two main supports over the last fourteen years, one was a consultant at the hospital, a trainee who had a huge affect on me coping. She unfortunately, she did her training and actually left and her leaving had a huge affect on me. And the other vital support, other than obviously my family, is my GP who, even though I'm far away from now, I can still phone up whenever I need to. I think that's huge. But I shun quite a lot of support that I probably could have. My GP's put support groups numbers and flyers and things in my hand but I read it and I don't do anything 'cos they make it too real I think, I think that's why, I don't know, I don't know. |