full list of topics

Stories of discovery :

• Early symptoms of epilepsy and first seizures
• Routes to diagnosis of epilepsy
• Experiences of different tests
• Feelings about diagnosis

Experiences of different seizures :

• Experiences of different seizures and auras
• Triggers and managing them

Treating & managing epilepsy :

• Epilepsy medication
• Medication side effects
• Brain surgery and VNS
• Complementary approaches
• Seizure alert dogs
• Experiences of health services and professionals

Living with epilepsy - everyday life :

• School, studying and bullying
• College & university
• Work and (un)employment
• Friends
• Dating, relationships and sex
• Contraception, fertility and pregnancy
• Alcohol, smoking and recreational drugs
• Driving, transport and travel
• Sport and exercise
• Living arrangements and safety
• Parents and family

Living with epilepsy - emotions and feelings :

• Awareness and misconceptions about epilepsy
• Risks, injuries and SUDEP
• Anxiety and depression
• Humour and jokes about epilepsy
• This helped me and messages to others