Epilepsy Society
www.epilepsysociety.org.uk
Helpline - 01494 601400 (national rate) open Monday to Friday, 10am to 4pm.
Epilepsy Society (formerly the National Society for Epilepsy) is the largest medical charity for epilepsy in the UK. It provides information and support to professionals and people affected by epilepsy. Also provides care for people with epilepsy through medical, residential and rehabilitation services. The helpline offers a chance to ask questions, gives the time to talk, and provides emotional support.
Epilepsy Society online epilepsy forum
Epilepsy Society on facebook
Epilepsy Action
www.epilepsy.org.uk
helpline@epilepsy.org.uk
Helpline - 0808 800 5050 Monday -Thursday 9am - 4.30pm, Fridays 9am - 4 pm.
New Anstey House, Gate Way Drive, Yeadon, LEEDS, LS19 7XY
Epilepsy Action is the largest member-led epilepsy organisation in Britain, acting as the voice for the UK's estimated 456,000 people with epilepsy, as well as their friends, families, carers, health professionals and the many other people on whose lives the condition has an impact.
Epilepsy Action online forum,
Epilepsy Action - Face book
Brainwave. The Irish Epilepsy Association
www.epilepsy.ie
Tel: (01) 455 7500
249 Crumblin Road, Dublin 12
Their site has lots of helpful information on a wide range of subjects. It has a good section on regional support groups in Ireland.
CHARGE
www.charge.org.uk/
Promotes understanding of epilepsy, includes personal accounts.
Epilepsi Cymru / Epilepsy Wales
www.epilepsy-wales.co.uk
Tel: 08457 413 774 Bi-lingual service is provided wherever possible.
Epilepsy Wales, P.O.Box 4168, Cardiff, CF14 0WZ
Epilepsy Bereaved
www.sudep.org
epilepsybereaved@dial.pipex.com
Tell: 01235 772852
Epilepsy Bereaved, PO Box 112, Wantage, Oxon OX12 8XT
Is the leading voluntary organisation in the UK and internationally on Sudden Unexpected Death in Epilepsy (SUDEP) and other epilepsy related deaths. Epilepsy Bereaved works to prevent SUDEP through research, education and awareness and provides information, support and enablement for people affected by seizure-related deaths.
Epilepsy Canada
www.epilepsy.ca
Is a well set out site with nice graphics. Information comes from a wide variety of sources, and although the treatment section is a bit sparse, the site does include a good section on coping.
Epilepsy Connections
www.epilepsyconnections.org.uk/
info@epilepsyconnections.org.uk
Tel: 0141 248 4125
Epilepsy charity in Greater Glasgow and Forth Valley areas.
Epilepsy foundation (US)
www.epilepsyfoundation.org/
An American based foundation providing information about epilepsy. Has sections for children and young people.
Epilepsy Research UK
www.epilepsyresearch.org.uk
Is the only national charity solely dedicated to epilepsy research.
Epilepsy Therapy Project
www.epilepsy.com
Information about epilepsy, has sections for children and young people's section.
Epilepsy Youth in Europe
www.eyie.org/
Network for young people with epilepsy; information and a chatroom.
Expressions of Courage
www.expressionsofcourage.com/index.html
Art by people with epilepsy.
International Bureau for Epilepsy
www.ibe-epilepsy.org/
An organisation of laypersons and professionals interested in the non-medical aspects of epilepsy.
JEC - Joint Epilepsy Council of U.K. and Ireland
www.jointepilepsycouncil.org.uk
An umbrella body for organisations in the United Kingdom & Ireland working for people with epilepsy.
Medicine Guides
www.medguides.medicines.org.uk
Detailed information about AEDs.
National Centre for Young People with Epilepsy
www.ncype.org.uk
info@ncype.org.uk
Tel: 01342 832 243
NCYPE, St Piers Lane, Lingfield, Surrey, RH7 6PW.
The National Centre for Young People with Epilepsy (NCYPE) is the UK's leading provider of education, assessment, rehabilitation, treatment and care for children and young people aged 5 to 25 with complex epilepsy and other neurological conditions.
Out of the Shadows
www.outoftheshadows.com
Raising Awareness about epilepsy.
Support Dogs
www.support-dogs.org.uk
Is a UK charity dedicated to improving the quality of life for people with epilepsy and people with disabilities by training dogs to act as efficient and safe assistants, including seizure alert dogs.
UK Epilepsy and Pregnancy register
www.epilepsyandpregnancy.co.uk
Monitoring the effects of epilepsy and AEDs on pregnancy.