Interview 01

Age at Interview: 26

Sex: Male

Age at Diagnosis: 17

Background: Lives on his own but he is supported by family and social services. Help organised a charity event for teenage cancer patient and their siblings in Xmas 1998. White British.

Brief outline:First, diagnosed in 1995 with a brain tumour, chorion carcinoma; relapse 6 months later. Treatment:surgery (biopsy); chemotherapy, radiotherapy. Long life medication. In remission. Second 1997, mixed teratoma on cerebellum. In remission.

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You talked a little bit about the tests can you explain more?

I had the, the ophthalmologist, the specialist eye doctor, he looked at my eyes and did various tests including something called visual fields which looked at how I saw the world as it were in different parts of my vision to see really what, what I could see when I was looking straight forward. And you do this in a simple test, its just you sit there with your face in front of a, a machine and it flicks little lights on and off around your, your periphery vision, your, your main sight and so on and from that you get a picture of what vision you do actually have. And this showed that my vision was quite impaired. And he also noticed that I had quite pale discs at the back of my eyes and this is used by specialists who understand and to see how, how healthy the eyes are. And he saw that they, they weren't as they should be and recommended that I have an MRI which consequently I did.