Interview 21

Age at Interview: 22

Sex: Female

Age at Diagnosis: 5

Background: Single, no children; lives at home with her family; works full time as a child care assistant. Participates in the activities of TOPS; a teenage support group.

Brief outline:She was diagnosed with acute lymphoblastic leukaemia (ALL). Treatment: chemotherapy and radiotherapy. She has a Keyloid scar on her chest which appeared after the Hickman line was removed.

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I had a Hickman line put in and that was left in for two and a half years. Usually they leave them in for two years, but for some strange reason I got slipped through the net [laughs] but that's when the sort of problem started when the line got taken out I was left with a quite a big cigarette burn on my chest. They decided that the next thing was that they would operate on it, to take away the rise of it and unfortunately then it started to grow. I was then referred back to the Hospital where I was given more tests some injections into the scar to try and reduce it unfortunately that didn't work and it was still growing I was then referred to s London I don't remember the hospital but it [laughs] was quite a big hospital in London and saw someone there. But they said that they would be happy to operate but I would need consent of my Consultant down in here. Unfortunately [laughs] my consultant wouldn't give me the okay due to the operations being given radiotherapy again so I'm now left with a Keyloid scar on my chest which is unfortunately not going to get any better [laughs] just probably worse. Which is, being a lady that I am of twenty-two quite self-conscious I don't wear low cut tops everything comes round to the neck

Okay, why did the Consultant didn't like the idea of you having radiotherapy again?

I like think face-ably it could cause more harm and cause the Cancer cells to come back again but they had no, no information to say that it would, it be like a fifty-fifty chance. In my view I was, I, I would had wanted that chance taking place and have the operation because I am a girl of twenty-two and, you know, I, I don't go swimming, I don't go, wear low cut tops and I do get asked loads of questions, “What is that?” And I don't tell everybody about it because then I get sort of the treatment where I'm sort of protected and I don't like being protected, I mean I'm a fairly one-on-one girl, I do everything and if I want to do it, but luckily I just make up I've been shot by [laughs], shot by an arrow and it's [laughs]. But certainly when I do tell people they are very sympathetic and they be, once I've told them they don't bring it up again, that, you know, that's, that's final.

Being within TOPS, the group that I belong with, it's quite funny that I'm the only person that's got scar just like that, it's quite surreal thinking, “Well why I'm the only person?” You know, there's [laughs] sixty, seventy people out there all had sort of similar situations and I'm the only person that's got, got the scars, so I did bring that up with them and they said, “No, it's definitely just, you're, you're just, you're the odd one out the bag as such”.

[Laughs].

Which is [laughs] I supposed it's okay, I'm quite individual [laughs].