Interview 32

Age at Interview: 27

Sex: Female

Age at Diagnosis: 7

Background: Performing artist. Shares a house with a friend. Her advice to other young people who are not doing their insulin injections is to find the courage and to seek help as soon as possible.

Brief outline:Since diagnosis and until she was sixteen years old she was on a two daily injections of insulin. Until her early teens she had well-control diabetes, but then it began to slip. She found her insulin regimen oppressive and limiting so when it was changed to short-acting and long-acting analogue insulin she had a sense of freedom that she has never experienced before in relation to food and mealtimes. The problem was that around the same time she started to be concerned about her weight and decided to go on a diet. That was the start of her eating disorder that was to last for several years. She realised that she needed help and talked to her GP whom she trusted. Eventually she was able to find a psychologist that worked with her and helped her overcome her eating disorder. Unfortunately she developed diabetes-related complications which affected her eyesight. She was registered blind at the age of 23. She currently uses an insulin pump and her control is very good.

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Sometimes, you see as a diabetic, [cough] although I was controlling what I ate, [cough] you can't always control your blood sugars. Obviously if I have a, if I have a hypo, a hypoglycaemic attack I have to eat sugar, otherwise I die, you know, simple as. When you have an eating disorder, you have a hypoglycaemic, glycaemic attack and you have to eat something sweet and sugary, it's disastrous, because you don't want to eat it, because you think it's going to make you fat. And in actual fact this is what spiralled my first binge off. I had a hypo. I ate some fudge that was, because I had nothing else at hand. And then that was it. I just wanted to eat and eat and eat and eat and eat. And I couldn't stop. And like any bulimic knows, once you've done that you feel terribly guilty. But I actually have a really bad phobia of vomiting. That, it's something that I could never ever ever do. I just didn't know how to get rid of this binge. So I exercised and, and I starved myself for the week after. Hence the cycle, which started off with the starve-binge, starve-binge. 

About a year or so after that, funnily enough, ironically enough it was a diabetes nurse who put the idea into my head. It had got to the point where I was so ill that everybody around me was worrying. You know, I'd lost a lot of weight, I was thin, I was not concentrating on anything, I looked very very ill. 

I wasn't realising the damage I was doing to my body. It's not something that was at the forefront of my mind. It was the fact that I was fat. I needed to be thin. Especially to be a singer and to be an actor, I had to be thin. And that's the only way I was going to make it. So as soon as she said that, this kind of light went on in my head and I thought, 'Why didn't I think of that? I'm a diabetic'. That's when the starve-binge and not injecting myself regime started. 

And when you don't inject for the binge, if you don't inject for a few days after, you can actually, I mean I've lost sort of over half a stone in a few days doing what I used to do. I lost weight again. And it got to the point where I wasn't doing my injections about three or four days and my sugar was so so high. I remember being, and by this time I was, I'd left school and I was in work. I left school at 16 with a view to working and then going to drama school when I was a bit more sorted out. Because you can't learn lines and you can't sing when your sugars are so high and you're so dehydrated all the time. And mentally you can't focus on anything.

I actually remember being in my workplace and being in the toilet. I remember sitting at my desk, thinking, 'I have to go to the toilet because I'm going to keel over and I'm going to go in a coma'. And I went into the toilet. And I actually sat in the toilet and I just, I was looking at the floor thinking, 'I can fall on the floor now and go into a coma. But if I do that I might not ever wake up again. I can't do it'. So, I don't know how, mentally I managed not to collapse. I got home and I did an injection. And it was a really really hard thing to do. Because in the back of my mind was, 'If I do this injection I'm going to be so fat'. But also in the back of my mind it's, 'I have to do this injection. I'm going to die if I don't do this injection'. My sugars weren't even registering on the, in fact at that time I was using BM sticks with a, matching up with a colour chart. The sugar was just, it there wasn't a colour on the chart for what my sugar was. It was so high. It had gone off the scale. And I think that was the point when, when I said to myself, 'Right, I need, I need help. Because it's got to the point now where I will probably die. If I, if I go in a coma and I don't inject myself with insulin, I'll probably die'. I was getting pains in my body, pains, pains in my joints, I was getting pains in my kidneys. My eyes were hurting and the vision was blurred in my eyes quite a lot. So I was persuaded to sort of get help. I mean there were a few times when I was suicidal, you know, because of the state that I was in, and the, mentally with the high sugars I was just a complete mess.